The following educational resources includes information that our family collected while Robyn was battling Myeloid Dysplastic Syndrome (MDS) which converted to Acute Myeloid Leukemia (AML) in 2 months versus the 7 months initially projected. Other resources listed below are from the Leukemia & Lymphoma Society, the American Cancer Society, the Myelodysplastic Syndromes Foundation, Inc., and the Hoxworth Blood Centers, University of Cincinnati. By no means are we claiming the information is complete. It is our hope that the resources provided on this page will allow you to gain useful information in a timely manner so that you and your family can make informed decisions.
1. What is Acute Myeloid Leukemia (AML) - http://www.lls.org/content/what-is-aml
2. What is beat AML - http://www.lls.org/content/what-is-beat-aml
3. Leukemia & Lymphoma Society’s leadership role in AML - http://www.lls.org/content/llss-role-in-beat-aml
4. The Beat AML® Master Trial - http://www.lls.org/beat-aml
5. Understanding Myelodysplastic Syndromes (MDS) - https://www.mds-foundation.org/what-is-mds/
6. MDS Glossary (Commonly Used Bone Marrow Failure Terms) -https://www.mds-foundation.org/wp-content/uploads/2016/04/9-27-17-MDS-Glossary-Update-Final.pdf
7. What Does My Bone Marrow Do - https://www.mds-foundation.org/wp-content/uploads/2016/11/Blood-Marrow-Booklet_English_11.23.2016.pdf
8. Patient & Caregiver Resources - https://www.mds-foundation.org/patient-caregiver-resources/#Programs
9. Building Blocks of Hope (MDS Foundation) - http://buildingblocksofhope.com/
10. Building Blocks of Hope (MDS Foundation) what is MDS - https://www.youtube.com/watch?v=fu11vFacKWs
The following information on Acute myeloid leukemia (aml) was provided by the American cancer society
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THE FOLLOWING INFORMATION ON ACUTE MYELOID LEUKEMIA (AML) AND MYELODYSPLASTIC SYNDROMES (MDS) WAS PROVIDED BY THE LEUKEMIA & LYMPHOMA SOCIETY
17. Myelodysplastic Syndromes (MDS) information: www.lls.org/llssearch?search-terms=MDS&search_language=en
18. Information Specialist: http://www.lls.org/support/information-specialists?src1=21156&src2
19. Support Services: http://www.lls.org/support-resources
20. Co-Pay Assistance Program: www.lls.org/copay
THE FOLLOWING INFORMATION ON MYELODYSPLASTIC SYNDROMES (MDS) WAS PROVIDED BY THE MDS FOUNDATION INC.
21. Patient & Caregiver Resources: http:///www.mds-foundation.org/patient-caregiver-resources/ - Programs
THE FOLLOWING INFORMATION IS PROVIDED BY THE HOXWORTH BLOOD CENTER, UNIVERSITY OF CINCINNATI
22. Informational Booklet: http://hoxworth.org/customer-service/booklet.html
23. Donate Platelets: http://http://www.hoxworth.org/donors/faq/platelets.html